After some more clarification and using a new lung
measurement, we’ve been told that our baby has a predicted 20-25% chance of
surviving. It feels like every time we get new information it brings our baby’s
chances down further. After thinking and praying about it a lot, we decided
against doing the experimental trial procedure. So now we continue to wait and
have lots of appointments at McMaster.
A few days ago I got a sweet care package from a CDH
Organization that I had registered with (http://www.cherubs-cdh.org/). Things
like this have been so nice as we go through this hard time.
But
this I call to mind, and therefore I have hope: The steadfast love of the LORD
never ceases; his mercies never come to an end; they are new every morning;
great is your faithfulness. “The LORD is my portion,” says my soul, “therefore
I will hope in him.” – Lamentations 3:21-24
Hey Emily, Thank you for opening up and sharing all this. Wishing you the absolute best in this very difficult time.
ReplyDeleteThank you Rob!!
DeleteI was just reading this verse this morning and immediately thought and prayed for you guys! So neat to read it on here now!
ReplyDelete